Peter Frampton, the legendary rock musician who rose to fame with his live album Frampton Comes Alive! in 1976, has been battling a rare and incurable muscle disorder for the past nine years. The condition, known as inclusion body myositis (IBM), causes progressive weakness and wasting of muscles, especially in the hands, arms, legs, and face.
Frampton, who is now 73 years old, has been candid about his diagnosis and how it affects his life and career. He has also been actively involved in raising awareness and funds for IBM research, hoping to find a cure or a treatment for this cruel disease.
What is IBM and how does it affect Frampton?
IBM is a type of inflammatory myopathy, a group of disorders that cause inflammation and damage to the muscles. IBM is different from other forms of myopathy because it also involves the accumulation of abnormal protein deposits, called inclusion bodies, inside the muscle cells.
These deposits interfere with the normal functioning of the muscles and lead to their gradual deterioration. IBM usually affects people over the age of 50, and is more common in men than women. The exact cause of IBM is unknown, but it may involve a combination of genetic and environmental factors.
The symptoms of IBM vary from person to person, but they typically include:
- Difficulty walking, climbing stairs, or rising from a chair
- Frequent falls and tripping
- Weakness and atrophy of the muscles in the hands, forearms, thighs, and lower legs
- Difficulty gripping, pinching, or holding objects
- Trouble swallowing, speaking, or smiling
- Fatigue and weight loss
Frampton first noticed something was wrong in 2015, when he fell on stage twice in three weeks. He also had trouble lifting his arms and running. He went to see a neurologist, who diagnosed him with IBM after performing a series of tests, including a muscle biopsy.
Frampton was shocked and scared by the news, but he decided to go public with his condition in 2019, when he announced his farewell tour. He wanted to perform as much as he could before his disease progressed to the point where he could no longer play guitar.
Frampton has been coping with IBM with the help of his family, friends, fans, and doctors. He has been taking part in a clinical trial at Johns Hopkins University, where he receives an experimental drug that may slow down the progression of IBM. He has also been exercising regularly, as physical activity is believed to be beneficial for people with IBM.
He has been recording new music and collaborating with other artists, such as the Doobie Brothers, Sheryl Crow, and Eric Clapton. He has also been supporting the Peter Frampton Myositis Research Fund, which he established in 2019 with the Johns Hopkins Myositis Center. The fund aims to raise money for IBM research and awareness, and to help other people with the disease.
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How can you help Peter Frampton and others with IBM?
Frampton has expressed his gratitude for the support and love he has received from his fans and the public. He has also urged people to learn more about IBM and to donate to his fund or other organizations that are working to find a cure for IBM. Some of the ways you can help are:
- Visit the Peter Frampton Myositis Research Fund website and make a donation or purchase merchandise. You can also sign up for updates and news on Frampton’s health and IBM research.
- Visit the Johns Hopkins Myositis Center website and learn more about IBM and other forms of myositis. You can also make a donation or participate in a clinical trial if you have IBM or a related condition.
- Visit the Myositis Association website and find out more about IBM and how to cope with it. You can also join a support group, attend a conference, or volunteer for the association.
- Visit the Muscular Dystrophy Association website and discover more about IBM and other neuromuscular diseases. You can also donate, advocate, or get involved in events and programs.
- Share this article or other information about IBM on social media, using the hashtags #IBM, #Myositis, #PeterFrampton, or #FramptonComesAlive. You can also follow Frampton on Twitter or Facebook and send him your messages of encouragement and appreciation.
Peter Frampton is an inspiration to many people, not only for his music, but also for his courage and resilience in the face of IBM. He has shown that he is not giving up on his passion or his hope for a cure. He has also shown that he is not alone in his fight, as he has the support of his loved ones and millions of fans around the world. By learning more about IBM and helping Frampton and others with the disease, you can make a difference and show that you care. Together, we can make IBM history.
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